Update: Treatment

After initially being told that UC Davis was the nearest medical center for a stem cell transplant, the plan changed 10 days ago to UCLA. Early last week, however, my insurance company told me that UCLA was not one of its “centers of excellence” and that therefore my benefits would not cover me to go there for treatment. Rather, the insurance company had approved it as a place to go for a second opinion. I asked them if they were requiring me to get a second opinion; they said no. My wife and I talked with our doctor about whether it was still a good idea to go to UCLA and get evaluated. “Not if you’re not going to get treated there,” she replied. This is because, wherever I get treated I will be getting evaluated and, in essence, receiving a second opinion. “Going to UCLA will just waste time.” Continue reading

Life on Hold

Photo by Mickewazowski

Photo by Micke Wazowski

Six weeks ago, my beautiful daughter Indra was born. Two weeks later, I got a sore throat. I connected these events. One doesn’t get a lot of sleep with a newborn, nor is there a chance for exercise or healthy eating. I went to urgent care and was treated for strep. The sore throat didn’t get better. And I developed weird symptoms. My heart would pound with the smallest effort. I started waking up with my pupils dilated; everything would look like it was zigzagging around, and it would take an hour for my vision to improve. Writing became difficult because everything was just so bright. Plus, I was just so worn out all the time.

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